Last week I visited the neurology department at my hospital. I saw a different doctor (again) and two lovely medical students from the University of Otago. It was a visit I had not been looking forward to at all. I am sorry to report that it met my expectations in that I left in a … Read more
It’s almost World Parkinson’s Day. It’s something big on my calendar yet I’m sure to most people it’s ‘just another awareness day.’ In the six years I have had this disease I have seen the Covid-19 pandemic sweep the world and an effective vaccination program created and rolled out worldwide. Yet the drugs I am … Read more
Good old Facebook, always there, ready to surprise you with that memory option. I was going to write about feminism, nothing to do with Parkinson’s at all. I can hear some sighs already. Don’t worry. Facebook put paid to that as it reminded me six years ago I visited the hospital for the first time … Read more
I was recently asked what the progression of parkinson’s was like. I had to think about it for some time. I replied truthfully, if perhaps not acurately. I replied with my truth, which may not be entirely satisfactory from a medical point of view, yet I feel is still valid. I told my friend that … Read more
Here I am on the rocks at Makara Beach near Wellington in New Zealand. We came out here for a day trip. Mr D’s Dad has a bach out there and he goes out most weeekends to sit on the deck and watch the world go by. It goes by pretty slowly. There’s not much there … Read more
I missed my anniversary this year. Not a fun anniversary, like a meeting, or wedding, no, no no. This was my Parkinson’s anniversary. It flew past on Facebook, in those memory things they put up. “and so begins my nine-tablet a day habit” I’d written. There were of course all the usual comments underneath, from … Read more
I was once told that my life appeared to be like some kind of film. Actually, I’ve been told many times my life appears to be some kind of major work of drama. Personally, I’m not convinced it would make the most riveting piece of action, however, it’s certainly never dull. Whilst others complain of … Read more
I’ve been struggling with lots of things recently. My life kind of fell apart for a while last year (I know, we all had our problems) but I’m claiming extra issues. I realised just how bad it had been when I undertook a presentation at a networking group I was in. While researching the information … Read more
Stuff I’ve found hard and things that help. Just like everyone, I go up and down in life and wellness. Good times come and go. Sometimes I’m doing well, sometimes I’m going through a rough time. I feel like I’m doing well at the moment, yet not that long ago I was feeling like I … Read more
It has been an odd time here. Five years ago to the day I was told I had an incurable neurological condition. Immediately followed by the cheery phrase “you will be limited.” From the so-called support person. Five years ago I was in a state of shock. Stunned. Disbelief. Denial. To create additional angst on … Read more