Finding out that you are sick is always pretty rubbish. But what if you discovered that you were never going to get better? That instead, you were only going to get worse? How would you feel if everyone around you told you that you had no hope, that the only thing ahead was deterioration and … Read more
Something a little different. I’ve made a foray into short films. I hope you enjoy it, please let me know what you think in the comments! What should my next video be?
I have been struggling. It has felt as though I can barely keep my head above the water to breathe, yet I know I must persevere. I have too many things I wish to do, places to visit and experiences I want to enjoy. Yet I have been consumed by fear. Fear of the unknown. … Read more
I have been thinking about what to say to you. I have been lying awake (it’s 3am) feeling guilty I’ve not replied, but wondering what are the right words? It’s hard when you’re newly diagnosed. scratch that, it’s still hard now. That sudden shock. The painful realisation that this thing you’d hoped was ‘just a … Read more
We’ve all heard those adages about the simple act of dropping a small stone or pebble into a lake causing ripples far and wide. There’s another one about a butterfly flapping its wings in the forest. Basically, they say that each interaction that you have with everything changes it irrevocably. It’s forever changed, even if … Read more
Sometimes I wonder why I write my blog. Who is it for? Is it to help me to purge my fury and despair at the futility of my situation? Is it for others, to give them some solace in knowing they are not alone? Is it because I am an attention-seeking wannabe with ambition way … Read more
We all know that Parkinson’s is cruel. However it can be cruel in the most unexpected of ways. Whilst on this unpleasant and unwanted navigation of life with Parkinson’s I have learned some occasionally uncomfortable things about myself. I am writing specifically about my lack of sympathy and concern for those around me that become … Read more
A few weeks ago I was convinced to try roller-skating. I had been watching my daughter skate around the cul-de-sac where we live and thought it looked like a lot of fun. My son wanted to skate too, and his skates fitted me, so my children suggested I give it a go. I lasted about … Read more
Getting on with one’s life after a diagnosis of Parkinson’s is strange. There is the inevitable sadness, feelings of loss, confusion. I could go on with the negative stuff but it drags me down. Then there’s the good stuff. Yes, there is good stuff, but you might need to look a little harder for that. … Read more
