I usually write my blog on Monday for publication on Tuesday. Sometimes I write it on Sunday, planning and all that being an important thing. As is consistency. Every Tuesday. Without fail. Why Tuesday? Well, why not? It’s not Monday and it’s not Wednesday when you are thinking it’s nearly passed halfway through the week. … Read more
It’s been about 13 years since I first noticed I was dragging my foot. I can’t pinpoint the exact beginning, but I remember the first time I became consciously aware of it, and wondered if there was something wrong with me. I was 30 years old, and my first baby Niko was somewhere between 6 … Read more
It is currently World Parkinson’s Awareness Week. Or month, depending on how you look at it. It was World Parkinson’s Day on 11th April, James Parkinson’s birthday. But enough about him. Some of us sadly have to be only too aware of flaming Parkinson’s every single day. It’s a bit of a drag. (No pun … Read more
Learning to jump – both literally launching oneself into the air, and figuratively jumping right into the deep end, or doing something you’re afraid of – normally are equally impossible for me. More like learning to fly (“I’m learning to fly/ but I ain’t got wings/ Coming down/ Is the hardest thing”). Unlike Tom Petty … Read more
I was going to write about how great it is to be five years on and still appearing to the outside world as though I’m fine. Parkinson’s is a strange thing. Every day you think “this is the healthiest my brain will ever be” as you know that tomorrow and the next and the next … Read more
My good friend Kitty asked us in her latest blog post to write down three words you think of when you hear the word ‘disease’. Here’s mine – sickness, broken, unwell. For me, what it means to have “Parkinson’s Disease” has changed over time. For a large part of that time though, I have not … Read more
Let’s open a can of worms. It’s something that’s been bothering me for some time now and I believe it’s the right time to call it out. It’s one word. Seven letters. Not that large, but the consternation and discussions I have had around it astound me. I’m going to write the word out for … Read more
This may surprise you, but I frequently feel like I just can’t do it anymore. Its like this blackness washes over me, and I struggle to recognize what is happening, and where to find the light switch. This is familiar scenario. I’ve put a lot of time, effort, work and research over the last few … Read more
Images Are Important They say a picture is worth a thousand words. Images are powerful. Which is why I’m horrified when I look at some of the images that are used by organisations that claim to help / support / provide information to those people that are affect by Parkinson’s. Why, why, why is the … Read more
Disease or Condition? I had a call from a friend yesterday that had been reading my blog. She asked me why I kept referring to Parkinson’s with the word ‘Disease’, as she knows I hate that term. I explained that it is a new website and I wanted to attract the widest traffic I could, … Read more