kitty 
Sometimes I wonder why I write my blog. Who is it for? Is it to help me to purge my fury and despair at the futility of my situation? Is it for others, to give them some solace in knowing they are not alone? Is it because I am an attention-seeking wannabe with ambition way … Read more
We all know that Parkinson’s is cruel. However it can be cruel in the most unexpected of ways. Whilst on this unpleasant and unwanted navigation of life with Parkinson’s I have learned some occasionally uncomfortable things about myself. I am writing specifically about my lack of sympathy and concern for those around me that become … Read more
A few weeks ago I was convinced to try roller-skating. I had been watching my daughter skate around the cul-de-sac where we live and thought it looked like a lot of fun. My son wanted to skate too, and his skates fitted me, so my children suggested I give it a go. I lasted about … Read more
Getting on with one’s life after a diagnosis of Parkinson’s is strange. There is the inevitable sadness, feelings of loss, confusion. I could go on with the negative stuff but it drags me down. Then there’s the good stuff. Yes, there is good stuff, but you might need to look a little harder for that. … Read more
Last week I visited the neurology department at my hospital. I saw a different doctor (again) and two lovely medical students from the University of Otago. It was a visit I had not been looking forward to at all. I am sorry to report that it met my expectations in that I left in a … Read more
It’s almost World Parkinson’s Day. It’s something big on my calendar yet I’m sure to most people it’s ‘just another awareness day.’ In the six years I have had this disease I have seen the Covid-19 pandemic sweep the world and an effective vaccination program created and rolled out worldwide. Yet the drugs I am … Read more
Good old Facebook, always there, ready to surprise you with that memory option. I was going to write about feminism, nothing to do with Parkinson’s at all. I can hear some sighs already. Don’t worry. Facebook put paid to that as it reminded me six years ago I visited the hospital for the first time … Read more
Disease or Condition? I had a call from a friend yesterday that had been reading my blog. She asked me why I kept referring to Parkinson’s with the word ‘Disease’, as she knows I hate that term. I explained that it is a new website and I wanted to attract the widest traffic I could, … Read more
A Day in the Life – Emma Woke up, got out of bed, took a bunch of dopamine. Living with Parkinson’s sometimes involves some crazy swings and roundabouts in energy, and general feelings of wellbeing. Yesterday I gave a good demonstration of how suddenly and shockingly I can crash. I was making pancakes for lunch, … Read more
