It has been an odd time here. Five years ago to the day I was told I had an incurable neurological condition. Immediately followed by the cheery phrase “you will be limited.” From the so-called support person. Five years ago I was in a state of shock. Stunned. Disbelief. Denial. To create additional angst on … Read more
After saying last blog that I would do the opposite of whatever I thought I should do, I then totally forgot about that and just carried on with business as usual. I’m actually repeating circles within circles, learning and re-learning the same thing over and over again. In the week just been I’ve had three … Read more
The last few weeks have been rather tough. In fact, rather tough doesn’t really even begin to cut it. Yet on we go. The world continues to turn for us, though sometimes it’s hard to understand how everyone else is out there living their lives like nothing has happened. Death has a strange way of … Read more
I’ve had a radical thought, that I’m going to apply to my life and see what happens. I’m doing to do the opposite of whatever it is I think I should do. This radical idea pinged into my brain a couple of hours ago, as a result of a day spent musing about stress buckets. … Read more
I’ve been thinking a lot about time. It’s something that exists and does not exist. A construct of humankind to measure ourselves and give meaning. Yet it moves forward, always, and we are carried along in this stream marking our path and filling our days with what we feel is productive activity. Learning I had … Read more
This blog is all about making good moves to promote your own health and wellbeing. I write about things I’m learning in the process of living and creating me. One thing that is talked about a lot in the context of people living with neurological conditions like Parkinson’s, is motivation, or a struggle to maintain … Read more
I usually write my blog on Monday for publication on Tuesday. Sometimes I write it on Sunday, planning and all that being an important thing. As is consistency. Every Tuesday. Without fail. Why Tuesday? Well, why not? It’s not Monday and it’s not Wednesday when you are thinking it’s nearly passed halfway through the week. … Read more
It’s been about 13 years since I first noticed I was dragging my foot. I can’t pinpoint the exact beginning, but I remember the first time I became consciously aware of it, and wondered if there was something wrong with me. I was 30 years old, and my first baby Niko was somewhere between 6 … Read more
It is currently World Parkinson’s Awareness Week. Or month, depending on how you look at it. It was World Parkinson’s Day on 11th April, James Parkinson’s birthday. But enough about him. Some of us sadly have to be only too aware of flaming Parkinson’s every single day. It’s a bit of a drag. (No pun … Read more
Learning to jump – both literally launching oneself into the air, and figuratively jumping right into the deep end, or doing something you’re afraid of – normally are equally impossible for me. More like learning to fly (“I’m learning to fly/ but I ain’t got wings/ Coming down/ Is the hardest thing”). Unlike Tom Petty … Read more