What a crazy time it has been. I believe that I need to begin to look after myself a bit better after all the insanity and start to put my house back in order. Just as I was pondering the best way of doing all this I stumbled across a post from an organisation involved with Parkinson’s. In it they talked of the disconnect between body and brain widening. I found this extremely unsettling, and commented as such, provoking a debate about the usefulness of the article.
At no point did I say that the information inside the article wasn’t of value, simply that the assumptive writing and terminology could be perceived as making depressing reading to those with Parkinson’s. I feel it’s especially frightening for those of us with early onset Parkinson’s, who like to think that we can still live long, productive lives despite our affliction.
Who said I cant do anything I choose?
Assumptions For Failure
Assumptive terms surround us all the time and their subliminal messages are quite terrifying to those of us carrying this disorder. We are already looked upon with pity, sympathy and a degree of sadness by some. It’s bad enough when our friends and family do this, but they’re uninformed and don’t understand the disease. When a leading organisation does it, it’s somehow more insidious and scary.
Are we doomed? Every time I look up ‘Parkinson’s’ online I see articles such as ‘the 5 stages of Parkinson’s’, comments about lifespan that vary wildly (it appears that in reality it doesn’t necessarily affect your lifespan) and quite frankly a scary amount of things on dementia and mobility aids. I don’t mind admitting to you that it scares me. It scares me a lot.
I’m 46. I feel pretty good most days. I take a bit of getting going on a morning, but I think most people do at my age. Once I’m up and about I’m generally pretty good. My medication works wonders on my wonky leg and arm, and I’m delighted about that. Long may it continue.
And that’s the point really. I need positivity in my life. I need to be encouraged to get out there and experience everything that I can. I do not believe I’m being unrealistic about my condition, yet I am of the opinion that a positive outlook can achieve wonders. By thinking positively and avoiding negative language I hope that the subliminal ideas don’t take hold in my mind and cause a self-fulfilling prophecy.
On The Up
We’re constantly told that “we will” do this and “this will” happen. How about words like “this may happen to some people” or “you might find that…” instead? The difference is immediate. Words are powerful. By using affirming and strong positives we can change the outlook for people with Parkinson’s. Instead of assuming that all of us will ultimately certainly become severely physically disabled, suffer with dementia and need mobility aids, we remove the feeling of futility that is often associated with this condition. We instead project a brighter alternative. If you’re already feeling depressed and negative, reading that things are hopeless will further your distress. To read that it’s only a possibility may encourage you to try to seek help, try some exercise, help yourself feel better.
Those that write these posts and articles for social media should take extreme care when crafting their words. For some, it could be the difference between a lifetime of hopelessness and misery, or a brighter, happier outlook. This could in turn alter their physiological state. After all, Parkinson’s may affect us all differently, but we all need to look forward in hope for a brighter tomorrow, whilst making the most of today.
Until next time, Kitty.
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